can anyone tell me of their experience with the multiple sclerosis drug Avonex?
97551
I've had Avonex for over two years. \nNo exacerbations, but I'm Primary Progressive on trial basis.\n\nMy right side is too weak, so I have injection given to me weekly at work. Given late afternoon Friday.\n\nA few hours later, most times, I get mild flu like symptoms, backache and hot cold flashes.\nSometimes it gets worse and major fatigue aches and pains take me out till Sunday morning.  Other times mild reaction and I am active all weekend.
962458
Here are link to two people who have MS:\nhttp://www.montelms.org/\nhttp://www.nationalmssociety.org/neil_cavuto.asp\n\nEmail me if you tomorrow when you've been to your doctors.  I have had a relative who had MS. Hopefully, it's something with a quick treatment and not MS.  There are new better treatments for MS every day.
1025089
Yes I have and I would not recommend it. There is more to the story,but I will give some insight. If the individual or if its you who is considering it ask yourself these questions: How old am I and what more do I want to achieve in life. Personally I do well in society and got allot going for me. The problem is the side effects they said would go away never did. Memory loss and just plain forget fullness are ones. There is this kind of thing where you just freeze and forget things its hard for me to explain on the computer.
1130067
I know this sounds insane but we have a medical column written by Dr. Gott (I think) in our daily paper.  He has published numerous letters from people who put a bar of soap under their sheets and it stops restless leg syndrome.  My mother-in-law was visiting from Montana a couple of years ago and was complaining about her RLS so I showed her one of the articles.  She is a very skeptical person but she tried it and now swears by it. She mentions it every time she visits.  Worth a shot, right?
162028
Hi wolflover. The best place to find information on MS is here\nhttp://www.nmss.org/\n\nthere are many sites online that offer useful information and one that I pay attention to is\nhttp://mayo.mondosearch.com/cgi-bin/MsmFind.exe?QUERY_ENCODING=UTF-8&CFGNAME=MssFind.cfg&AND_ON=Y&ALLCATS=X&NO_DL=X&query=ms\n which is mayo clinic\n I hope if this is you looking for information for yourself that you find what you need. If you would like I can edit this later and add my email for a short time for you to contact me. I myself have MS so I have alot of information and other sites you could try. Good Luck and Be Well\nhttp://www.healthtalk.com/multiplesclerosis/programs/10_462/index.cfm\nThis is a site that offers a call in show approx. once a month usually dealing with some aspect of MS\nAnother good site is
353415
I actually have my son on it right now.  Yes, I think it's working.  It's NOT going to replace an anti-depressant but if you need a little help dealing with stress it can do wonders.  I didn't tell him what it was but he noticed a difference in just a couple of weeks.  \n\nI started taking it and noticed a difference in less time  than that.  I started taking it to deal with some added stress that left me with symptoms of chronic fatigue and find that while I didn't actually notice it so much while taking it, I noticed a real drop in my overall mood after about a week of not taking it.  By constast, St. John's Wort didn't work for me AT ALL.\n\nIt's not a miracle by any means, but I'd recommend it.
116288
I would not recommend it. From what I've read no one should really be using the artifical sweetners and it appears that it could worsen MS. I've included a few articles for you. Good Luck! \n\nIt Mimics Multiple Sclerosis\nWhen the temperature of Aspartame exceeds 86 degrees F., the wood alcohol in Aspartame converts to formaldehyde and then to formic acid, which in turn causes metabolic acidosis. (Formic acid is the poison found in the sting of fire ants.) The methanol toxicity mimics multiple sclerosis; thus people were being diagnosed with having multiple sclerosis in error. The multiple sclerosis is not a death sentence, where methanol toxicity is. In the case of systemic lupus, we are finding it has become almost as rampant as multiple sclerosis, especially Diet Coke and Diet Pepsi drinkers. Also, with methanol toxicity, the victims usually drink three to four 12 oz. cans of them per day, some even more.
714764
My sister uses Imitrex, and swears by it.  It used to be administered only by injection, but now they've made it available in capsule form.  See http://www.Imitrex.com\nAlso, I used to try an ice pack on my head.  It helps minimally, but at least it did something.\nHope this helps you.
1104445
I, don't know about the book, but I read an article quite recently about a woman, suffering from MS, and she went to Holland for some treatment, which was talked of as being a major breakthrough in curing MS. The treatment I believe, involved using the woman's own stem cells, which were somehow administered to her, the results of her treatment were very encouraging and positive, and appear to have repaired the damaged myelin sheath. She came back to England, without having to use her wheelchair as her mobility had improved.\nThe reason that she went to Holland for the treatment, is that it is not available on the NHS. I think the cost of treatment was about 12,000 pounds.
509262
Subject: Beware of diet soft drinks  \nDiet Softdrink is doing it...\n \n \nPlease read this! It may help you or someone you know.\n\nIn October of 2001, my sister started getting very sick. She had stomach spasms and she was having a hard time getting around. Walking was a major chore. It took everything she had just to get out\nof bed; she was in so much pain.\n\nBy March 2002, she had undergone several tissue and muscle biopsies and was on 24 various prescription medications. The doctors could not determine what was wrong with her. She was in so much pain, and so sick...she just knew she was dying.\n\nShe put her house, bank accounts, life insurance, etc., in her oldest daughters name, and made sure that her younger children were to be taken care of.. She also wanted her last hooray, so she planned a trip to FL (basically in a wheelchair) for March 22nd.\n\nOn March 19th I called her to ask how her most recent tests went, and she said they didn't find anything on the test, but they believe she had MS. (Multiple Sclerosis)\n\nI recalled an article a friend of mine E-mailed to me and I asked my sister if she drank diet soda? She told me that she did. As a matter of fact, she was getting ready to crack one open that moment... I told her not to open it, and to stop drinking the diet soda !!! I E-mailed her the article my friend, a lawyer, had sent.\n\nMy sister called me within 32 hours after our phone conversation and told me she had stopped drinking the diet soda AND she could walk!!!! The muscle spasms went away. She said she didn't feel 100% but she sure felt a lot better. She told me she was going to her doctor with this article and would call me when she got home.\n\nWell, she called me, and said her doctor was amazed! He is going to call all of his MS patients to find out if they consumed artificial sweeteners of any kind...\nIn a nutshell, she was being poisoned by the Aspartame in the diet soda... and literally dying a slow and miserable death.\nWhen she got to FL March 22nd, all she had to take was one pill, and that was a pill for the Aspartame poisoning! She is well on her way to a complete recovery . and she is walking!!! No wheelchair!!!\n \nThis article saved her life.\n\nIf it says "SUGAR FREE" on the label, DO NOT EVEN THINK ABOUT IT!!!\n\nI have spent several days lecturing at the WORLD ENVIRONMENTAL CONFERENCE on "ASPARTAME," marketed as 'NutraSweet,' 'Equal,' and 'Spoonful.'\nIn the keynote address by the EPA, it was announced that in the United Statesin 2001 there is an epidemic of multiple sclerosis and systemic lupus. It was difficult to determine exactly what toxin was causing this to be rampant.\n\nI stood up and said that I was there to lecture on exactly that subject. I will explain why Aspartame is so dangerous: When the temperature of this sweetener exceeds 86 degrees F, the wood alcohol in ASPARTAME converts to formaldehyde and then to formic acid, which in turn causes metabolic acidosis. Formic acid is the poison found in the sting of fire ants. The methanol toxicity mimics, among other conditions, multiple sclerosis and systemic lupus. Many people were being diagnosed in error. Although multiple sclerosis is not a death sentence..., methanol toxicity is!\n\nSystemic lupus has become almost as rampant as multiple sclerosis, especially with Diet Coke and Diet Pepsi drinkers. The victim usually does not know that the Aspartame is the culprit. He or she continues its use; irritating the lupus to such a degree that it may become a life-threatening condition.. We have seen patients with systemic lupus become asymptotic, once taken off diet sodas.\n\nIn cases of those diagnosed with Multiple Sclerosis, (when in reality, the disease is methanol toxicity), most of the symptoms disappear. We've seen many cases where vision loss returned and hearing loss improved markedly.\n\nThis also applies to cases of tinnitus and fibromyalgia.\n\nDuring a lecture,
221014
I think you should order it on http://www.essiac-herbal.com/ or some other website that sells Essiac. I don't know if it is available in the UK, you should google it, but even if the firm is located in the US, you can still pay by Paypal, Western Union ot the like and shipping is easy, you will receive the package in a week. I haven't heard of the treatment you are looking for, but you should check out cesium-chloride too, that is said to be he most effective (though many doctors conceal its existence). Anyway, good luck and get better.
343190
I have not used it, but I wouldn't. Check out the article below - the FDA gave them a warning for false advertising. I took a look at their ingredients when I was in GNC one time - it just contains random herbs, none of which have been proven to lower cortisol. Save your money - there's no magic pill, whether supplement or prescription.\n\nJohn
980714
G'day Gizmo82979,\n\nThank you for your question.\n\nThere are concerns about Chantix or Varenicline for people with kidney problems and breastfeeding mothers. There are also a wide range of possible side-effects such as nausea, headache, vomiting, flatulence, insomnia, abnormal dreams and dysgeusia.\n\nIf you are having problems with it, see your doctor.\n\nI have attached sources for your reference.\n\nRegards
129375
Go to www.streetdrugs.org if you want info on pot itself,\nas far as "getting some" thats' something that could take a while depending on if you know someone who uses it!!\n\nI'm an M.S. patient and legally in Md I can own 30 grams (1oz)for the symptoms that are horrible with multiple sclerosis, BUT this type of use falls under MEDICAL only, as I have the proof pot can possibally benefit my other MS \nmeds.... and this MUST BE DOCUMENTED BY A LEGITIMATE DR IN YOUR MEDICAL RECORDS....\nas of yet I have not done this, but I certainly can since here in my states LIMITED amounts are legal without prosecution for medical use ONLY.\nI am going to try my best to obtain some safe marijuania that I know is "clean" and is not tampered with other drugs
371235
My wife has MS 11 years now, and we found some help from homeopathic means. Go to herbalhealer.com and when you become a member (its free) you can consult with a naturopathic doctor online for treatment suggestions.\nAlso I found a product called Kallawalla at organichope.com\nits too soon to tell you if it works but its something to look at. Good luck!
249042
What Are Some Other Alternative/Complementary Therapy Options for MS?\n\nMassage. Many people with MS receive regular massage therapy to help relax and reduce stress and depression, which can exacerbate the disease. There is no evidence that massage changes the course of the disease. It is usually safe for people with MS to receive a massage, but if you have bone-thinning osteoporosis (usually as a result of your treatments) massage may be dangerous. Talk to your doctor first.   http://www.medicinenet.com/alternative_therapy_for_multiple_sclerosis/article.htm\n\nIt sounds like, with your doctor's blessing, it is something worth looking into.  If it is not beneficial, you can easily stop this type of therapy.  Good luck...
1023820
I myself have not taken it, but a few others that I know that are close to me are taking it currently.  In their opinion, it is working, although it takes a while to kick in for full effectiveness.  Just keep taking it if you've been prescribed it.