what kind of treatments can you use to help alleviate phenylketonuria (pku)?
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The only way to 'alleviate' PKU is to strictly adhere to the diet plan provided by a specialized nutritionist. My daughter has PKU, and cannot tolerate any more PHE daily than is contained in one teaspoon of peanut butter. The student MD is partially correct in supplementing tyrosine. Protien consists of several amino acids, all of which the body needs to function normally. Phenylalenine, however, will build up phenylpyruvic acid that will attack the brain and nervous system. The body needs the rest to function normally. As a result, PKU patients need a dietary supplement, usually in the form of a powdered drink, to fortify the body with the remaining amino acids that the body doesn't get because the patient eats so little protien.
1049445
Hi,\n\nI don't think there is a cure for this disease but there are several drugs available and coming through the system that may help ease the problems or slow them down.  \n\nTry these links:\n\nhttp://www.clevelandclinic.org/health/health-info/docs/2100/2112.asp?index=8877\nhttp://armor.typepad.com/bastardsword/2004/08/potential_cure_.html\nhttp://www.medicalnewstoday.com/medicalnews.php?newsid=35418
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Yes there is a cure.\n\nCases which are resistant to the traditional medicines\n\nCases which are only partially better with the traditional medicines,\n\ncan be treated with homeopathy.
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Currently there is no cure for PKD, not with conventional medicine or (despite what you have been told) alternative medicine.\n\nUltrasound (sonogram) is usually used to diagnose this especially when the cysts are active. Genetic testing confirms the diagnosis.  CTs & MRIs can be used but are not ususally required.  The extra imaging you have had may have been redundant and unneccessary.  For now, get a hold of all your films, reports and labs -- you will need them.  The main concern at this time is to prevent or control pain, high blood pressure and UTIs and well as find help.\n\nYou may want to contact the Kidney Foundation and see what they suggest.  Call to get an 800 number and check their website.  They may have programs for someone in your situation, programs that will give you immediate help.\n\nMy hope is that you can avoid ESRD (end-stage renal disease), kidney failure and transplant.\n\nI'm not certain if you are eligible for Disability or Supplemental Security Income benefits through the Social Security Administration but it's something to investigate.  You would need the medical information I suggested you acquire and any written physician statements you can get concerning the probable diagnosis.  If I am able to find additional help for you, a grant perhaps, I will contact you if I'm able.\n\nGod bless you and your family.  You're in a very frustrating position but I'm sure there are others who will try to help.  You're not alone!
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Phenylketonurics are people who have PKU disease.  People with this disease cannot digest the amino acid phenylalanine properly, so if they eat too much of it, it could build up in their brains and cause mental problems.  The warning on the wrapper is warning these people not to eat that product so they can avoid ingesting phenylalanine.  I think all products with Nutrasweet have this warning (apparently Nutrasweet is high in phenylalanine).\n\nPKU disease is a genetic condition, and it can be easily discovered through a blood test.  I think that basically all babies born in the United States are tested for PKU almost immediately after birth.
297722
take calcium and i also was told to take potassium and it worked wonders, just stay away from all those paint on remidies, you need to do the repairs from the inside out.
905621
usually  drinking coke and eating salt pretzels will help \n\nit helped me ..tip from my grandma\n\n\ninstead of drinking that pink stuff
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Homeopathic Treatment can help you overcome your disorder.\nPlease Feel free to contact me if really need help.
1128180
Treatment for lead poisoning begins with removing the sources of lead and providing balanced nutrition. A person who eats a balanced, nutritious diet absorbs less lead than a person whose diet is inadequate.\nIf removing the source of lead and balancing nutrition do not reduce lead levels, or if the blood lead level is very high, chelation therapy may be used. \nChelation therapy is a process that rapidly reduces the amount of lead stored in the body. Drugs called chelating agents cause metals like lead to bind to them, and then they are eliminated from the body through urine. Because chelating agents increase the absorption of lead and other metals, it is essential that sources of lead exposure be removed before a person is treated.\nChelation (pronounced key-LAY-shun) therapy is a medication treatment for removing poisonous metals, such as lead, from the body. It also may be used to remove excess iron from the blood.\n\nDuring chelation therapy, the person takes or has an injection of a medication (chelating agent) that binds to the metal; the medication and metal are then removed from the body through the urine. Chelation therapy also removes metals (like iron) that the body needs; therefore, chelation therapy must be done carefully.\n\nChelation therapy can be used to treat severe lead poisoning. It also may be used to treat iron overload in people who need frequent blood transfusions, which can create organ-damaging excesses of iron. (People with conditions such as thalassemia often receive blood transfusion therapy.) In addition, people with hemochromatosis may occasionally require chelation therapy to reduce iron excess in their blood.
37819
Sorry, it can not be cured, however the best strategy I know of that is natural is structure.  Have structure built into every aspect of their life.  Stay with a strict schedule and have things be predictable for the child.  It works for me and I have several students in my classroom who have difficulty with A.D.H.D.
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Treatment    Return to top \n\nTreatment for this disease concentrates on avoiding low blood sugar. Frequent feedings are needed during the day, especially foods that contain carbohydrates (starches). Neither fruit nor milk sugar can be adequately broken down in this disease, and are best avoided.\n\nOvernight fasting is avoided by continuous feedings (through a tube that goes through the nose into the stomach) of sugars or uncooked cornstarch. The tube can be put in at bedtime and taken out each morning. A medication called allopurinol, which can lower blood uric acid and decrease the risk for gout, is often used.\n\nSynonyms:\nvon Gierkes disease\nGlucose-6-Phosphatase Deficiency Glycogen Storage Disease\nType I Glycogenosis\nHepatorenal Glycogenosis\n\nIn Type I Glycogen Storage Disease, the enzyme glucose-6-phosphatase is defective in the liver, kidney, and small intestine, where it normally functions. However, the metabolic problem is centered in the liver.\n\nPatients with Type I GSD are unable to release glucose from glycogen. They cannot maintain their blood glucose levels and within a few hours after eating develop hypoglycemia (low blood sugar). The low levels of glucose in the blood of these patients often result in chronic hunger, fatigue, and irritability that is especially noticeable in infants. Symptoms of hypoglycemia only begin to appear when the interval between feedings increases and the infant sleeps through the night or when an illness prevents normal feeding routine. If the blood sugar falls to a low enough point, some patients may experience seizures. \n\nSince Type I patients are able to store glucose as glycogen but not release it normally, with time the stored glycogen builds up in the liver. Hormones, lactic acid, triglycerides, and other products are increased in the blood as the body attempts to raise blood sugar. Fats are stored in the liver along with the glycogen, which leads to enlargement of the liver. The liver does its many other functions normally, and there is not usually any evidence of liver failure. The kidneys are also enlarged due to glycogen accumulation. \n\nThe continued presence of low blood sugar eventually leads the body to experience severe biochemical abnormalities and delayed growth and development. Untreated patients may have muscle wasting and a buildup of body fat.\n\nWhen blood studies are done, it is discovered that there is usually a low blood sugar, elevated blood lactic acid, elevated cholesterol and other fats, and elevated uric acid concentration. High blood pressure has also been seen in a number of patients and when this occurs, appropriate treatment must be given.\n\nIn addition to the problems described above, patients with Glycogen Storage Disease Type Ib can develop frequent bacterial and fungal infections, due to abnormal functioning of the white blood cells. They may also develop chronic pancreatitis, chronic inflammatory bowel disease, and Crohn's disease. \n\nThe diagnosis of Type I GSD will always include blood studies, x-rays (including some of the kidneys), measurements, and ultrasound of the liver. Gene-based mutation analysis can be used to diagnose the majority of Type I patients, while liver biopsy analysis may be needed in some cases. \n\nThe treatments of Type I Glycogen Storage Disease are aimed at correcting the biochemical abnormalities and promoting growth and development. Current treatments consist of providing a continuous source of glucose by giving the patient glucose drinks frequently during the day and, in most cases, continuously overnight. Many medical centers have replaced these glucose feedings with uncooked cornstarch doses, mixed in water, Kool-Aid, or formula. \n\nLinks:\nvon Gierke Disease info from National Organization for Rare Disorders            [NORD]\nOMIM GSD Type I on Online Mendelian Inheritance in Man\n     searchable database\nGSD Type I from emedicine\nAmerican Liver Foundation information on Type I\nvon Gierke D
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Homeopathic Treatment for Curing a Potbelly or Help to Loose Weight and to Lower High Cholesterol Levels: -\n1.PHYTOLACCA 30C\n2.PHOSPHORUS 30C\n3.CHOLESTERINUM 30C\nThree Drops Each in a sip of water half hour before meals thrice a day always take them on an empty stomach. And avoid Chocolates Coffee Mints and Red Meat while you are taking any Homeopathic remedy.\nTake care and God Bless!
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Mental Acuity Plus has helped others with this condition.  Contains ginkgo, bilberry, hawthorn, and B vitamins.\n\nHope this is useful and feel free to contact me with questions.
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Aspartame is an ester of methanol and the aspartic acid/phenylalanine peptide. In your body, the ester is hydrolyzed to phenylalanine and methanol. Phenylalanine is an amino acid.\n\nPhenylketonuria is a genetic disorder that makes it impossible for these people to metabolize phenylalanine. So their bodies store it, particularly in the brain. It causes mental problems and can produce profound retardation in children.\n\nFortunately, it is also a genetic test that is performed at birth. Once it is known that a child has this disease, their diet can be restricted to prevent any problems.
264802
Try this link for causes and treatments....
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Phenylalanine occurs in two chemical forms: L-phenylalanine, a natural amino acid found in proteins; and its mirror image, D-phenylalanine, a form synthesized in a laboratory. Some research has involved the L-form, others the D-form, and still others a combination of the two known as DL-phenylalanine. \n\nIn the body, phenylalanine is converted into another amino acid called tyrosine. Tyrosine in turn is converted into L-dopa, norepinephrine, and epinephrine, three key neurotransmitters (chemicals that transmit signals between nerve cells). Because some antidepressants work by raising levels of norepinephrine, various forms of phenylalanine have been tried as a possible treatment for depression. \n\nD-phenylalanine (but not L-phenylalanine) has been proposed to treat chronic pain. It blocks enkephalinase, an enzyme that may act to increase pain levels in the body. \n\nThe long-term safety of phenylalanine in any of its forms is not known. Both L- and D-phenylalanine must be avoided by those with the rare metabolic disease phenylketonuria (PKU). \n\nThe maximum safe dosages of phenylalanine have not been established for young children, pregnant or nursing women, or those with severe liver or kidney disease.\n\nThere are some indications that the combined use of phenylalanine with antipsychotic drugs might increase the risk of developing the long-term side effect known as tardive dyskinesia, or worsen symptoms in those who already have it. \n\nLike other amino acids, phenylalanine may interfere with the absorption or action of the drug levodopa which is used for Parkinson's disease.
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My dad and I both suffer from extremly bad camps in our legs at night. We have found it helpfull to eat bananas and drink gatorade before bed. That is the non medication method. They also have medication you can pick up at your local drdug store that works as well.. But the all natural way seems to work just as well for both of us!